Osteogenesis Imperfecta- Cushioned In Love

Expressive and Emotional word content… poetic justice… my thoughts are perceptive, occasionally subjective but always dimensional. My career lies in psychology and my mind lies in philosophy. To question and ponder is to reflect. I am both reflective and directive. I never walk with caution as our steps need their footprints. I love this journey we call life.

Category: Poetry

Brittle Me

❤️ Brittle me – sneak preview 😜

Our joint project has been brought to life ❤️

As people know, our daughter has Osteogenesis Imperfecta (brittle bone disease).

We decided to coproduce a book to promote social inclusion and educate on osteogenesis imperfecta to children and adults, in a fun and appealing way.

All children want to be superheroes regardless of disability, and every child should feel included.

Please share as all proceeds go to brittle bone society

Available internationally!

Amazon.co.uk

Brittle Me Simply Me: Osteogenesis Imperfecta Broken Down https://www.amazon.co.uk/dp/B08H6TTCVG/ref=cm_sw_r_cp_api_i_bs.wFb6RXB1V5

Amazon.com

All proceeds to brittle bone society 🥰

Osteogenesis Imperfecta Federation Europe Brittle Bone Society Osteogenesis Imperfecta Foundation

Waiting to meet you…

I watch the hands as the clock bypasses time,

I feel you nearer,

The tick tocking in my heart

I can see you in my minds eye

Your smile warming my life

Who will you be my precious girl,

My sparkling snowflake,

I will chase your dreams and will catch for you,

My hand, ever warm, holding you tight

My heart in in time with yours.

My snowflake

I wrote this for my unborn little lady who the specialists believe has Osteogenesis Imperfecta – to joe public, this is brittle bones. I’m on a journey of discovery, heartache, intrigue, fear, anxiety, yet excitement. I don’t know what my little lady will have, nor do I know whom she will be. What I do know, is that like a butterfly, she will soar… and like a snowflake, she will glisten beautiful and serene.

My snowflake

Who will you be, this beauty of mine,

Sent to me to cherish and love,

Will you be vibrant, so full of life,

My angel of glass from above

A snowflake you are, So precious and true,

Gleaming and sparkling in light

my beautiful girl, I see you there

Your smile, my heaven delight.

I’ll hold your hand, and wipe your tears,

My vision of perfection you are,

My delicate snowflake,

That intricate you,

My shining and glittering star 💫

My Precious

Yet do I know you, but I feel you in my heart,

Your story is waiting to begin,

the page is blank,

Just reinforced by love, my sweetest one

Trepidation I own, yet I cannot wait to know you,

Your scent already etched in my bones,

Your smile in my heart,

My arms ready to pull you close and stroke your tiny face

I know you as I have dreamt you,

Dreams afresh and alive,

I see your angelic face,

I hear your laugh, infectious, and I know,

You were sent from above.

Emotional Parallel

Everlasting

You are the trickle of rain, the first droplet surprisingly gentle and pure, nourishing the earth,

You are the sound of the breeze, the sigh of the wind, gently stroking my hair, as you continue on your path.

The warmth of the sun on a summers day, the glistening light warming the coldest heart, drying my tears,

You are the sweetest snowflake, gentle kisses of crystal, your beauty evident in its whitened trail.

The deepened roots and the droplets of dew, you remain fresh and alive like the bloom of new petals, everlasting and pure.

You are everywhere, in every smell, touch, taste and sight,

No longer in body, yet I see your reflection in the ripples of the water, the shadows from the trees,

As I feel you still, my heart whispers and I hear you whisper back, Then I know you are not gone.

An Angel at my wedding 😇

My wedding day will be so many things. A day that we planned, you and I.

As I put on my dress, I can see you next to me, whispering that I’m your Angel and that our bond is unbreakable and strong. I know you are right and I know that even death can’t separate us.

In my mind I can see you, your beautiful dress and your smile in the sunlight,

I see your eyes sparkling and your face glowing as you take your place next to me.

I can feel your hand In mine as I walk towards my new husband and I know that you will be so proud as you dab your eyes. My ever constant.

As I whisper ‘I do’, I know you will be smiling and nodding your head. Family meant so much to you.

I can hear you saying that I am not alone and I know that gives you peace.

My tears will encompass so many emotions. I will cry for the day that is, but I will cry also for you and the day that never was. A day without you.

I can see the table and the empty seat, but I know I will feel you.

As we raise our glasses and toast a new life, I will also toast yours too.

As I dance and enjoy the music, I will imagine you are dancing and celebrating too.

I will look towards the stars like you told me, and I will smile and whisper ‘I love you’. As they twinkle, I will hear your reply.

My beautiful mum, now my forever Angel.

Always in my heart xxx

Memory Lane

A myriad of memories blur the edges of my despair,

Wash away the crippling pain with their softened touch.

I can see them before me,

Playing on, like a muted movie,

My life stark in the spotlight,

I watch alone.

I see a child dancing to her own music,

Her innocent mind punctuated only with love and security.

I feel her childlike hope,

Her dreams, laid out before her,

No fear as she looks to her side,

Her hand held tight.

The reel quickens as I fall for it’s lure,

I feel myself falling into the web,

Memories charming,

Reliving moments gone,

The odour of old, filling my senses,

Nostalgia knocking,

I surrender.

Sleep engulfs me as I lose my reality,

Floating, I hear the sigh escaping,

Forgetful, I pray,

In my minds eye,

she’s there smiling,

Yesterday feels closer now,

My hand reached out,

Not letting go

I awake to the sound of bird song,

Dazed, My eyes remain closed,

Refusal, I can only hope,

The light is brighter,

Life remains,

My hand is empty now,

Her touch still warm.

Unhidden

Metamorphosis

Hazy, though somewhat clear,
I wander,
Deep into my own being,
Escapism,
non faltering,
I hide,
Embracing my core

Safety, I seek fresh Solitude,
Pure freedom,
Expressive devour,
I watch quiet,
My own being,
Aware I become

Building, I grow ever stronger,
Inner prowling,
Morphing into my entirety,
I reach deeper,
I become,
The creation I own.

The mind of a deep thinker…or complete rubbish…it is all down to interpretation and perception…